Medico-social study on the opinions of parents on the problems of organizing medical care for children with cancer in the Russian Federation

Cover Page

Full Text

Open Access Open Access
Restricted Access Access granted
Restricted Access Subscription or Fee Access

Abstract

To study the opinions of parents (legal representatives) on the problems of organizing medical care for children with oncological diseases, a medical and social study was conducted. This study aims to examine the opinions of parents on the problems of organizing medical care for children with oncological diseases. This study was conducted based on the developed questionnaire for recording the opinions of parents (legal representatives) on improving the organization of medical care for children with cancer. The questionnaire comprised 27 questions, in which the respondents were asked to choose one or more answer options for each of them. For objectivity, the questionnaires were filled in anonymously. This medical and social study showed that 81.1 ± 1.9% of the respondents are not satisfied with the attitude of doctors and nursing staff toward them and their children, 15.9 ± 1.8% are only partially satisfied, and 3 ± 0.8% are fully satisfied (roughness in communication (35.8 ± 2.4%), lack of sufficient attention from medical personnel (21.3 ± 2.0%), and lack of interest in the success of treatment (19.7 ± 2.0%)). The combination of these options was noted by 23.2 ± 2.0% of respondents. As the preferred treatment site for their children, 63.7 ± 2.4% of the respondents indicated a medical organization of federal subordination and 33.9 ± 2.4% a medical organization located outside the territory of the Russian Federation, in which 57.4 ± 2.4 % of the respondents mentioned the possibility of receiving a patient-oriented service and complex routing during treatment between the medical organizations in the Russian Federation as a reason for choosing. Furthermore, 12.7 ± 1.6% of the respondents indicated a lack of confidence in the qualifications of medical personnel in the Russian Federation; 11.8 ± 1.6%, the lack of comfortable conditions for examination and treatment; 5.3 ± 1.1%, the lack of necessary diagnostic and treatment methods; and 12.8 ± 1.6%, a combination of the listed options. Overall, the findings of this study indicate the need to further improve the organization of medical care for children with cancer: introducing patient-oriented approaches and improving patient routing to create a patient-centric health care system for organizing medical care for children with cancer are necessary.

Full Text

Restricted Access

About the authors

Maxim Y. Rykov

Sechenov University

Author for correspondence.
Email: wordex2006@rambler.ru
ORCID iD: 0000-0002-8398-7001
SPIN-code: 7652-0122

Dr. med. Sci., Associate Professor, Associate Professor, Department of Oncology Institute of Clinical Medicine

Russian Federation, Moscow

Olga A. Manerova

Sechenov University

Email: omanerova@mail.ru
ORCID iD: 0000-0002-1660-9414
SPIN-code: 6991-3622

Dr. med. Sciences, Professor, Professor of the Department of Public Health and Health Care named after N.A. Semashko

Russian Federation, Moscow

Ivan A. Turabov

Northern State Medical University of the Ministry of Health of Russia

Email: turaivan@yandex.ru
ORCID iD: 0000-0003-4047-406X
SPIN-code: 1787-2363

Dr. med. Sci., Chief Freelance Pediatric Specialist Oncologist of the Ministry of Health of the Arkhangelsk Region, Head of the Department of Pediatric Surgery, Dean of the Pediatric Faculty of the Northern State Medical University of the Ministry of Health of Russia

Russian Federation, Arkhangelsk

Vasily V. Kozlov

Sechenov University

Email: wordex2006@rambler.ru
SPIN-code: 7703-0013

Cand. med. Sciences, Associate Professor, Associate Professor of the Department of Public Health and Healthcare named after N.A. Semashko

Russian Federation, Moscow

Vladimir A. Reshetnikov

Sechenov University

Email: wordex2006@rambler.ru
ORCID iD: 0000-0002-7853-7356
SPIN-code: 4016-2059

Dr. med. Sci., Professor, Head of the Department of Public Health and Healthcare named after N.A. Semashko

Russian Federation, Moscow

References

  1. О задачах субъектов Российской Федерации по повышению доступности и качества медицинской помощи (по материалам заседания президиума Государственного Совета 30 июля 2013 г.) // Вестник Росздравнадзора. — 2013. — № 4. — С. 5–9. [On the tasks of the constituent entities of the Russian Federation to increase the availability and quality of medical care (based on materials from a meeting of the Presidium of the State Council on July 30, 2013). Vestnik Roszdravnadzora. 2013;(4):5-9. (In Russ.)]
  2. Баранов А.А., Альбицкий В.Ю., Модестов А.А., и др. Заболеваемость детского населения России (итоги комплексного медико-статистического исследования). // Здравоохранение Российской Федерации. — 2012. — № 5. — С. 21–26. [Baranov AA, Albitsky VYu, Modestov AA, et al. The morbidity of children population in Russia: the outcomes of comprehensive medical statistical study. Zdravookhranenie Rossiyskoy Federatsii. 2012;(5):21-26. (In Russ.)]
  3. Послание Президента Федеральному Собранию Российской Федерации 1 декабря 2016 г. [Presidential Letter to the Federal Assembly of the Russian Federation dated December 1, 2016. (In Russ.)] Доступно по: http://www.kremlin.ru/events/president/news/53379. Дата обращения: 15 декабря 2018 г.
  4. Савва Н.Н., Винярская И.В., Устинова Н.В., Альбицкий В.Ю. Злокачественные новообразования в нозологической структуре заболеваний детей, нуждающихся в паллиативной помощи // Онкопедиатрия. — 2015. — Т. 2. — № 3. — С. 334. [Savva NN, Vinyarskaya IV, Ustinova NV, Albitsky VYu. Malignant neoplasms in the nosological structure of diseases in children needed palliative care. Onkopediatriya. 2015;2(3):334. (In Russ.)]
  5. Румянцев А.Г. Научные достижения и перспективы развития детской гематологии/онкологии // Вопросы современной педиатрии. — 2010. — Т. 9. — № 4. — С. 7–15. [Rumyantsev AG. Scientific progress and perspectives of children’s hematology/oncology development. Voprosy sovremennoi pediatrii. 2010;9(4):7-15. (In Russ.)]
  6. Огошков П.А., Спичак И.И. Оптимизация организации региональной специализированной службы на модели детской онкологический службы в Челябинской области // Педиатрический вестник Южного Урала. — 2015. — № 2. — С. 5–13. [Ogoshkov PA, Spichak II. Optimization of the regional specialized service management on the model of pediatric oncological service in the Chelyabinsk Region. Pediatricheskiy vestnik Yuzhnogo Urala. 2015;(2):5-13. (In Russ.)]
  7. Чойнзонов Е.Л., Писарева Л.Ф., Одинцова И.Н., и др. Состояние онкологической службы в Сибири и на Дальнем Востоке // Здравоохранение Российской Федерации. — 2014. — Т. 58. — № 3. — С. 10–14. [Choinzonov EL, Pisareva LF, Odintsova IN, et al. The state of oncological service in Siberia and Far East. Zdravookhranenie Rossiyskoy Federatsii. 2014;58(3):10-14. (In Russ.)]
  8. Основы эпидемиологии и статистического анализа в общественном здоровье и управлении здравоохранением: учебное пособие. 1-е изд. — М.; 2004. 194 c. [Osnovy epidemiologii i statisticheskogo analiza v obshchestvennom zdorov’e i upravlenii zdravookhraneniem: Uchebnoe posobie. 1st ed. Moscow; 2004. 194 p. (In Russ.)]
  9. Артюхов И.П., Борцов В.А., Шульман А.В. Статистический анализ основных показателей здоровья населения и деятельности здравоохранения: учебное пособие. — Красноярск: КрасГМУ; 2008. — 121 c. [Artyukhov IP, Bortsov VA, Shul’man AV. Statisticheskiy analiz osnovnykh pokazateley zdorov’ya naseleniya i deyatel’nosti zdravookhraneniya: Uchebnoe posobie. Krasnoyarsk: KrasGMU; 2008. 121 p. (In Russ.)]
  10. Состояние онкологической помощи населению России в 2018 году / под ред. А.Д. Каприна, В.В. Старинского, Г.В. Петровой. — М.: МНИОИ им. П.А. Герцена филиал ФГБУ «НМИРЦ» Минздрава России; 2018. — 236 c. [Sostoyanie onkologicheskoy pomoshchi naseleniyu Rossii v 2018 godu. Pod red. A.D. Kaprin, V.V. Starinskiy, G.V. Petrova. Moscow: MNIOI im. P.A. Gertsena filial FGBU NMIRTs Minzdrava Rossii; 2018. 236 p. (In Russ.)]
  11. Рыков М.Ю., Турабов И.А., Желудкова О.Г. Внедрение электронной базы данных детей с онкологическими заболеваниями в пилотных медицинских организациях: результаты проспективного когортного исследования // Онкопедиатрия. — 2018. — Т. 5. — № 1. — С. 5–12. [Rykov MYu, Turabov IA, Zheludkova OG. Set-up of the electronic database of pediatric cancer patients in pilot medical facilities: a prospective cohort study. Onkopediatriya. 2018;5(1):5-12. (In Russ.)] http://doi.org/10.15690/onco.v5i1.1861.
  12. Gupta S, Rivera-Luna R, Ribeiro RC, Howard SC. Pediatric oncology as the next global child health priority: the need for national childhood cancer strategies in low- and middle-income countries. PLoS Med. 2014;11(6):e1001656. http://doi.org/10.1371/journal.pmed.1001656.
  13. Lozano R, Wang H, Foreman KJ, et al. Progress towards Millennium Development Goals 4 and 5 on maternal and child mortality: an updated systematic analysis. Lancet. 2011;378(9797):1139-1165. http://doi.org/10.1016/S0140-6736(11)61337-8.
  14. Kellie SJ, Howard SC. Global child health priorities: what role for pediatric oncologists? Eur. J. Cancer. 2008;44(16):2388-2396. http://doi.org/10.1016/j.ejca.2008.07.022.
  15. Conklin A, Morris Z, Nolte E. What is the evidence base for public involvement in health-care policy? Results of a systematic scoping review. Health Expect. 2015;18(2):153-165. http://doi.org/10.1111/hex.12038.
  16. Трифонова Н.Ю., Плавунов Н.Ф., Бойко Ю.П., Галь И.Г. Принципы управления качеством медицинской помощи // Здравоохранение Российской Федерации. — 2015. — Т. 59. № 2. — С. 4–7. [Trifonova NYu, Plavunov NF, Boyko YuP, Gal’ IG. The principles of quality management in medical care. Zdravookhranenie Rossiyskoy Federatsii. 2015;59(2):4-7. (In Russ.)]
  17. Линденбратен А.Л., Дубинин Н.Д., Фаррахова Г.Р., Ягудин Р.Х. Некоторые аспекты внедрения систем управления качеством медицинской помощи // Практическая медицина. — 2015. — № 4-2. — С. 68–71. [Lindenbraten AL, Dubinin ND, Farrakhova GR, Yagudin RKh. Some aspects of the implementation of quality management systems for medical care. Prakticheskaya meditsina. 2015;(4-2):68-71. (In Russ.)]
  18. Федеральный закон от 21 ноября 2011 г. № 323-ФЗ «Об основах охраны здоровья граждан в Российской Федерации». [Federal Law No. 323-FZ “On the Basics of Protecting the Health of Citizens in the Russian Federation” dated November 21, 2011. (In Russ.)] Доступно по: http://www.consultant.ru/document/cons_doc_law_121895. Ссылка активна на: 16.03.2019

Statistics

Views

Abstract: 216

PDF (Russian): 1

Article Metrics

Metrics Loading ...

Refbacks

  • There are currently no refbacks.

Copyright (c) 2020 Eco-Vector



This website uses cookies

You consent to our cookies if you continue to use our website.

About Cookies